Now I'm really convinced everyone is tired of reading my blog. I only got one comment from last week, even though I included an adorable picture of Kate! I will try to make this brief, because I know at this point it is much the same every week.
Mary Ann Tueller was nice enough to come with me to treatment last Thursday, while Kate and Taddy had a very full and fun day of activity at the Walton's. Thank you for the kind support, and thanks to Stuart Walton for going above and beyond by fixing Kate's bike handlebars. The Walton kids are good people, just like their parents!
Treatment started a little earlier this week, at 9:15. Mary Ann was prepared with a lunch this time, since I was planning on another long day. The routine was much as it always is, except I saw the nurse practitioner again instead of the doctor, and she told me my platelet counts are getting low, so I'll probably need a transfusion in the next few weeks. She also let me know who to see if I needed help with my lifting toenails, so as not to let them become painful or infected or to have them ripped off. I was a little surprised about the transfusion news since I've felt more energetic the past few weeks and haven't had any signs of weakness or fainting. She warned I might experience those sensations soon.
Mary Ann was excellent company during treatment. She asked me lots of questions and let me talk almost the entire time, although I learned a little more about her and her children and grandchildren. She is a great example to me of continuing to learn, live, and pursue new interests after retirement age, and also a great example of how to get along with and enjoy a husband, and I could always use pointers in that area.
Unfortunately, just like the last 3 weeks, I had a physical reaction to the Taxol. It was the same severe back pain, and with it came the same necessary precautions and slowdowns. The infusion was stopped, more medicines administered, vitals taken, and the nurse practitioner consulted. I am growing accustomed to the pain of the treatment and feel fortunate that they are able to alleviate it right away, but the duration of the treatment is annoying, with Thursday's wrapping up a little after 4:30. MSTI is such a pleasant place, however, with such an excellent staff, that I already know I'll miss it when my chemotherapy treatments are over.
On Thursday evening after treatment we had our first entire family melt down in a long time. I'm sure a lot of it had to do with my tiredness after a long day, but it was just one of those evenings when everything seemed to go wrong, and everyone seemed to be short tempered and upset. Of course the house is a little chaotic when the mom is gone all day, and as a result chores went undone and frustrations ensued. The low point for me was cleaning the kitchen floor on my hands and knees in the wee hours of the morning, knowing I had to wake up early the next morning to drive to Salt Lake, but also knowing how hard it would be on my family at home if the work didn't get done.
Everything turned out just fine and Thursday night is just a bad memory now. Kate and I and my mom had a great, although brief, trip. My mom and I were able to be at my niece Ali's sealing in the Salt Lake temple, Kate was able to see her Las Vegas cousins that she doesn't get to see nearly often enough, and most importantly, I stayed awake and our drive was safe. I also got to see my sister Heidi and her husband who moved to Kansas City last summer, their son Chase and his wife (Chase just graduated with a degree in Japanese and business from BYU) and my nephew Jared who flew into the SLC airport after driving his sister and niece to Mississippi to join up with husband and father, Tyler. At the reception in Burley the next day we got to see my brother Jared and his wife Val and their daughter and son-in-law and two adorable grand children. There's nothing else in life that quite compares to sharing important occasions with family, and I thoroughly enjoyed the weekend. I also enjoyed having just one of my kids with me, because it gave me time to focus just on her needs, she had no one to argue with, and she was delightful!
I am grateful I was feeling well enough to take this trip, that my family at home was willing to take care of Tadman while I was gone, and that Parker (13 as of last Friday!) was willing to put off his birthday celebration for a little while so I could go. I am also happy that Tadman was spared a bad case of the croup that seemed to be coming on Thursday night but never really materialized. My life would be empty and meaningless without my family, and I am so glad to have had the chance to renew and enrich those relationships through a little weekend away.
Many thanks to my friends and family once again for all the mental, spiritual, and physical support. I may have given up long ago without you, and even if I hadn't given up, getting to this point certainly would have been much more difficult. I hope you can feel the sincerity of my gratitude, because it's real and heartfelt! Onward!
Sunday, August 16, 2009
Subscribe to:
Post Comments (Atom)
Hey! Just because we don't always comment, doesn't mean we aren't reading! Keep blogging, please!
ReplyDeleteSorry about the "melt down". Margi, I have a pretty good idea of how this all played out, but it is not your job to be scrubbing the floor in the middle of the night! Next time you call me, and I'll scrub AND set the guilty parties straight!
Hang in there! Love you...
I second that. I'm back and can mop ANYTIME! Between jetlag and having 8 people in my house fulltime (seems alot after only 3) I'm still trying to adjust...soon, though, I'll be back to being your number one blog stalker! Sorry things are tough. Hang in there. You're quite a trooper!!
ReplyDeleteMargie,
ReplyDeleteThanks so much for coming to the wedding! It was wonderful to see you and Kate in person. I may be prejudiced, but you looked wonderful and radiant when I saw you. We loved so much having you there in the temple and at the reception in Burley and I know it meant a great deal to Ali.
I hope you keep writing your blog. You are such a great example to me of meeting the challenges that life throws your way head on, doing all you can do to solve things and then relying on the Lord to make up the difference. I am also continually impressed by the great support network supplied by your ward members, friends and Boise families. You are all an example of Christ-like service.
Margie know that we love you, think about you and pray for you often. I have great faith that you are going to beat this cancer and we will grow old together.
Love always,
John
Margie
ReplyDeleteYou are a good writer. Maybe a column awaits you in a newspaper someday. What an inspiration to take all this head on and play your hand. (poker talk) I am back at work this week and wishing the summer was a bit longer. Then again, only 180 school days till June:) Fully expected Steve to be bald in one of these pictures. Is John? Maybe he is hanging on to every last fading folicle like I am. I talked to officer Joe the other day. You know he is SRO at Lowell Scott, right? I also ran into the Warren bros, Mond and Neal on facebook. No Tim Jones though. . .
Sorry to read about the pain you feel, but I know you are very tough, so hang in there. It is amazing to read about your support group and family. I ran into your son Tadman's namesake the other day at the gym. His wife is pregnant . . . maybe they should name a girl Margie. I'll bring it up for you.
John Keiser (fcla2000@yahoo.com)
I'm sorry I don't comment, I seem to be a lurker. I wait every week to see when you come out with your next update, praying that the Lord will help you through this and keep your spirits high. You are a great example to me and I am sure many other "lurkers" that frequent your blog!
ReplyDeleteKeelo
I guess you found out that we are NOT tired of reading your blog . . . just lazy about responding. Yes, there are many of us readers out here benefitting from your wit and wisdom, honesty and observations on life. Keep it coming and we'll keep reading and try to be better about letting you konw we're here. You're awesome.
ReplyDeleteHeidi
How did treatment day go yesterday?? I thought about you all day. I am glad you wree able to go on a little trip. Margi, Thou shalt not scrub the kitchen floor on your hands and knees in the middle of the night!!!!
ReplyDelete